Highly Vulnerable Children Research Center

Disclosure and experiences of HIV-related stigma among adolescents and young adults living with HIV in South Africa

Abstract: Adolescence is characterized by rapid expansion of social networks, lending to heightened considerations for HIV status disclosure among adolescents and young adults living with HIV (AYLHIV). This is of particular concern in South Africa where HIV stigma is prevalent. Using survey data from 1,186 AYLHIV in South Africa, this study investigates HIV disclosure and stigma among AYLHIV in South Africa. Knowledge of HIV status from peers, teachers and/or sexual partners was associated with double the odds of a recent HIV-related mistreatment. Findings support concerns regarding status disclosure among peer networks and school environments. AYLHIV need counseling to decide when, how, and whom to disclose to, coupled with coping skills to handle stigma and other adverse reactions. They can also benefit from support managing their physical health to prevent inadvertent disclosure and discrimination.

Citation: Nice, J., Thurman, T. R., Luckett, B., & Zani, B. (2024). Disclosure and experiences of HIV-related stigma among adolescents and young adults living with HIV in South Africa. AIDS and Behavior.

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